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News stories tagged with "down-syndrome"

Readers & Writers: Michael Berube, Life As We Know It

A conversation with Michael Berube, author of Life As We Know It, a personal history of parenting a Down syndrome child. Born with Down syndrome, Jamie presented his parents and older brother a range of challenges, personal and political. The narrative of Jamie's life offered by his father Michael is intimate, inspiring, and informative. We see Jamie emerge at his own pace "into a vivid and indelible creature with a sense of humor." We also witness the emergence of his parents as adept and savvy advocates for their son and for the rights of people with disablities everywhere against an indifferent health care system and unresponsive government officials. Chris Robinson hosts.  Go to full article

Adirondack ARC, Helping Families Cope with Developmental Disability, Pt. 2

Brian Mann has the second of two stories about challenges for rural families raising children with disabilities. We visit one of the Adirondack ARC's group homes in Malone, and hear from kids who have risen to leadership roles inside the organization.

For further information on programs for the developmentally disabled contact: Parent to Parent of New York State (800-603-6778) and Parent to Parent of Vermont (802-655-5290 or 800-800-4005).  Go to full article

Adirondack ARC, Helping Families Cope with Developmental Disability, Pt. 1

Life can be pretty tough for families dealing with developmental disabilities, like Down syndrome or autism. In rural areas, where services and support are often hard to find, the hurdles can seem insurmountable. In this first of a two-part series, Brian Mann profiles a non-profit group that's trying to help. Adirondack ARC serves hundreds of people in the north country, many of them spread out in remote communities.

For further information on programs for the developmentally disabled contact: Parent to Parent of New York State (800-603-6778) and Parent to Parent of Vermont (802-655-5290 or 800-800-4005.)  Go to full article

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